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Come and Share!

We would love
to have you come
and be a part of
a caring network.

Please fill out our questionnaire below.
Your information will never be shared.

Serving Southern Illinois and Surrounding Areas
Our Support Group


"We get by with a little help from our friends"*


St. Mary's/Good Samaritan Hospital-Centralia Campus

400 N. Pleasant

Centralia, IL 62801


*Special Guest Speakers *Information/brochures *Open discussions *Refreshments/snacks

Meeting Room # 1

Every 3rd Saturday of the month

2 p.m.

- Get Directions Here -

St. Mary's Good Samaritan Hospital-Mt. Vernon Campus Meetings Coming Soon!

Call Spencer @204-8084 for more info.

* Credits to The Beatles, John Lennon-Paul McCartney-George Harrison-Ringo Starr <3

If you are getting the doctor shuffle, and they are telling you, you have this or that and

they really don't know what you have...and all your testing is fine...then run

don't walk to a Lyme Literate MD!

Email us or give us a call and we can help
 you find a doctor, testing
and more!


Your information is for statistics use only. It will NEVER be shared with anyone.

The information provided to us in this form will be kept confidential. 
By filling out this survey you are helping us to determine where we need to focus our research, education and support groups.

How did you hear about Illinois LDN?
Which disease do you have or request information about?
Please tell us your story, no word limit. 

If you would like to be contacted, leave your phone# or email addy.
Have you been misdiagnosed?

If so, what was you diagnosis?

In what city, state or county did you most likely contract Lyme disease?

Where (on your body) did you get bitten or do you remember a bite?

What Illinois County do you live in?

Tell us your symptoms in the text box below.

What are some of your symptoms?
  •  Unexplained fevers, sweats, chills, or flushing
  •  Unexplained weight change
  •  Fatigue, tiredness, poor stamina
  •  Unexplained hair loss
  •  Swollen glands
  • Sore throat
  • Testicular pain/pelvic pain
  • Unexplained menstrual irregularity or menopause at early age
  • Unexplained milk production; breast pain
  • Irritable bladder or bladder dysfunction
  • Sexual dysfunction or loss of libido
  • Upset stomach or abdominal pain
  • Change in bowel function (constipation, diarrhea)
  • Chest pain or rib soreness
  • Shortness of breath, cough
  • Heart palpitations, pulse skips, heart block
  • Any history of a heart murmur or valve prolapse?
  • Joint pain or swelling     
  • Stiffness of the joints or back
  • Muscle pain or cramps
  • Twitching of the face or other muscles
  • Headache
  • Neck creaks and cracks, neck stiffness, neck pain
  • Tingling, numbness, burning or stabbing sensations, shooting pains
  • Facial paralysis (Bell's Palsy)
  • Eyes/Vision: double, blurry, increased floaters, light sensitivity
  • Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
  • Increased motion sickness, vertigo, poor balance
  • Lightheadedness, wooziness, unavoidable need to sit or lie down
  • Tremors
  • Confusion, difficulty in thinking
  • Difficulty with concentration, reading
  • Forgetfulness, poor short term memory/attention
  • Disorientation: getting lost, going to wrong places
  • Difficulty with speech or writing; word or name block
  • Mood swings, irritability, depression
  • Disturbed sleep — too much, too little, fractionated, early awakening
  • Exaggerated symptoms or worse hangover from alcohol

Do you believe a family member could be infected?

Have you gone to a area doctor? What did they say?

Would you be willing to serve as a volunteer for the Illinois Lyme Disease Network?

Distribute brochures to Hospitals, Drs Offices, etc.
Give Lyme disease education talks at schools
Help staff booths at fairs (health care, state, 4H, craft)
Assist with lobbying efforts in Springfield
Seek local media coverage of Lyme related issues
Submit my personal Lyme story to magazines, newspapers, television
I would like to help arrange speakers for support group meetings
I can help with fundraising projects
Canvas door to door with Brochures

Would you consider having a support group in your area?

Would consider

The information provided to us in this form will always be kept confidential.  By filling out this survey you are helping us to determine where our focus needs to be on research, education or support groups. We will never share your information with anyone.

Disclaimer: The information submitted to Illinois Lyme Disease Network is used for research and education purposes ONLY, as we are not medical doctors or any medical affiliation.

Show a printed version and Mail to us!




Illinois Lyme Disease Network
P.O. Box 1824
Centralia, IL 62801